TD Bank Infinity Program
Here is a simple way to help NH CF PFAC raise $’s for our CF community. If you are a TD Bank customer or want to open an account at TD Bank, they will donate $’s to us. See below for details!
Move-a-palooza (formally Walkorama!)
Register for our 2024 Move-a-palooza 2024! We plan to get active, have fun and all participants will win prizes! Its so easy, register below and starting on March 17th until May 5th, track your weekly actively and log it each week! Our aim is to encourage our CF population to embrace a healthier lifestyle and subsequently enjoy better health outcomes. And, have some fun! We changed from Walkorama to Move-a-palooza to be more inclusive, now ALL activity counts!
Here’s what you need to know!
All CF patients who receive care at Dartmouth Health, their care givers, CF care team, PFAC members and their families are eligible to participate. Really, if you have a connection to Dartmouth Heath CF, you can join us!
Participants sign up for the event and will register their activity each week – steps, active minutes, miles or kilometers. The Move-a-palooza mathematician will gather the information and keep track of activity! We use the honor system!
Move-a-palooza ‘24 will start on March 17th and end on May 5th. Each week will have a theme –St. Patrick’s Day, Spring, April showers, Mud season, Marathon Monday, Cinco De Mayo
Most of all, we will be active, have fun and win prizes! Everyone who enters will receive our amazing Beanie hat with logo, AND there will be fantastic weekly prizes! And IT’S FREE!!!
Email us at nhcfpatientfam@gmail.com with questions
2024 Important Dates
We meet on Zoom on the dates below and would delighted if you could join us.
Email us at nhcfpatientfam@gmail.com for Zoom links or questions
Transitions Group
We know that transitioning from Pediatric care to Adult care can be stressful, so NH CF PFAC is organizing online gatherings for parents/caregivers to meet to discuss/chat about their loved ones who have CF with an emphasis on transitioning from pediatric to adult care. All are welcome – parents of newborns looking for info, or adult patients with CF willing to share experiences.
The meeting dates are below so mark your calendars; we would love to see you!
Zoom links will be shared prior to the meetings, email for more details.
Transitions Meetings.
Tues Feb 6th 7pm
Tues April 2nd 7pm
Tuesday Aug 6th 7pm
Tues Oct 1st 7pm
Tues Dec 3rd 7pm
Transitions of Care: Rosie’s Thoughts!
Emily interviewed Rosie as part of a program on transitions of care for the North American Cystic Fibrosis Conference. In the video below, Rosie shares her best tips on transitioning from inpatient to outpatient, and transitioning from the pediatric to adult team at Dartmouth!
Pillboxes available at your next clinic visit!
Supported by funding from the CF Foundation, our CF center pharmacists now have pillboxes available during your next clinic visit. Smaller boxes with multiple sections are perfect for pancreatic enzymes or other medications on-the-go. Split into morning and evening, the weekly pillbox is large enough for multiple tablets and capsules (yes, even vitamins!)
If you are interested in bringing one of these home, ask a CF team member at your next clinic visit.
Mindblown! Hands-On Learning Kits Available
The Ins and Outs of
Cystic Fibrosis:
Hands-On CF Learning Kits
MindBlown Kits provide a fun and engaging opportunity to learn about how CF affects the body and what treatments can do to help. Each kit includes hands-on activities to teach about a specific body system so kids (and adults!) can learn about how the body works. A collaboration between Sarah Vooris (mom to children with CF) and child life specialist Torie Miele, the kits aim to explore science concepts, connect them to CF care, and put it all together to increase understanding for patients and caregivers within the CF community and beyond.
Each kit has all supplies needed to make that set of projects. Some supplies (like scissors or tape) are meant to be used for multiple kits. Kits are grant funded and free! The first two kits focus on the respiratory system and germs. Future kit content will include the gastrointestinal system and nutrition, kidneys and blood filtration, the immune system, genetics and heredity, and more.
KIT AVAILABILITY:
Who: Developed for kids 7-13 years of age
When/Where: CF clinic appointments in Lebanon or Manchester, inpatient stays, or by mail anytime by request
How: Connect with your child life specialist directly or via your CF care team.
Designed by CF mom Sarah, and Child Life Specialist Torie
