NH CF PFAC Board Secretary

I’m on the board to work with patients and families to find ways to improve the lives of our families in creative ways. Working with the board makes me a better nurse by learning from the true experts.

Fun fact: I had a career in radio before becoming a nurse. If you had insomnia, you could hear me on the overnights at WZLX in Boston.

NH CF PFAC Board member

As a pharmacist and center coordinator, I know that we can only be successful with a team approach to care. Patients and their families are the most important team members, so I look forward to working with the PFAC to continue to improve the quality of life of our patients with CF!

Fun fact: I love to explore the U.S. National Parks, and have been to 50 out of 63. I hope to visit the remaining 13 in the next few years!

I am part of this group because I fundamentally and deeply believe that patients and parents HAVE to be part of the CF Team for us to provide the best possible care to our patients.

Fun fact: I have a new “COVID puppy” named Penny. "She is a complete character who has brought a lot of joy to her family in the midst of this crazy time."

My name is Roni and I am the new social worker on the CF team. I am moving to the Lebanon area from New York City, where I completed my MSW at NYU. I am passionate about tailoring mental health support to the needs of people living with chronic and serious illnesses. As a certified yoga instructor, I integrate mindfulness and somatic awareness into my social work practice.

NH CF PFAC Chairperson

I’m on the council as I believe that the CF community has so much to offer each other. My daughter has CF and I would like to share my experience as a parent and learn from others in the CF Community.

Fun fact: I sat beside Bono once at a traffic light!

I joined PFAC because I enjoy being involved in the CF network, learning new things, and meeting other CF parents and family members..it takes a village!

Fun fact: I would rather be quilting or outdoors on the water any day of the week!

PFAC is a link between the care team and patients/families outside the setting of the care experience itself. This is an important venue for communication unrelated to individual patient care and for getting patient and family input into the big picture

Fun fact: I was a competitive swimmer in high school and college.

Teacher, wife, and mother of three kids. I am part of PFAC because I want to stay on top of all the great things the center is and has done for our CF community, and do what I can to help continue this amazing work! My daughter‘s fight with CF has inspired me to never take anything for granted and never give up hope.

Fun fact: I played soccer from the age of four to age 17 as a goal keeper.

I joined PFAC to continue my child life work of strengthening the voices of patients and families and help make positive changes for the best patient experience.

Fun fact: My favorite color is yellow and I love snowboarding, stand up paddle boarding, and hiking.

I'm on the board because I have a four year old daughter with CF.

Fun fact: I played soccer and basketball in college.

Newsletter Creator

As the mom of a child with cystic fibrosis, I joined the PFAC group as a way to connect with other CF family members and my daughter’s care team, while also having the opportunity to reach other NH families with the work we do.

Fun fact: My husband and I own a fitness center and we’ve hiked half of NH’s 4000 foot mountains (so far).

Walkorama Committee

I am a PFAC member to contribute my lived experience as a parent of an adult with CF and help the DHMC CF community thrive!

Fun fact: I know how to ride a camel.

I wanted to be a member of PFAC, so I could collaborate with the health care team that cares for my daughter. Having the opportunity to provide feedback regarding our family’s experience and care is so important to me.

Fun fact: I used to babysit for a former Boston Bruins hockey player.

NH CF PFAC Vice Chairperson

Sarah is a mother, educator, advocate, and volunteer. When her daughter was diagnosed with cystic fibrosis as an infant, she shifted her focus toward the needs of those living with CF and the CF community. This change led to various endeavors, including fundraising and advocacy, development of CF educational kits for kids, CF center Patient Family Advisory Council participation, and involvement with the XoC Survey initiative. Sarah lives in Vermont with her husband, Mike, and her children, Regan and Maren.

NH CF PFAC Treasurer and Board Member

I am part of PFAC because I have CF and would like to help others with CF.

Fun Fact: When I was a university professor, I wrote three books on tree identification.

Walkorama Committee

I am a PFAC member as the father of an adult with CF. I will always be grateful for the care our family received from the team and I look forward to continuing work with the community.

Fun fact: I am long-time soccer fan and devoted supporter of Queens Park Rangers.

As the mom of a CF teen, I feel that the other people on the PFAC board and their work have been inspirational and supportive during our family's CF journey. I joined the group as an opportunity to participate in and give back to this community.

Fun Fact: I am a Dairy fanatic, from the cows and their farmers to the delicious products they provide, I am passionate about it all!

NH CF PFAC Board Member.

Walkorama Committee

I am on PFAC because as a person with CF, I think it’s important to share our experiences to help support others in the CF community.

Fun fact, I’ve completed 10 marathons